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March 12th marks the Dia Mundial of the Rim, an essential date to intensify global efforts to raise awareness about Doença Renal Crônica (CKD) and the importance of its early diagnosis and treatment. With alarming projections of up to 20 million potential patients in the Brasil, CKD appears as a serious condition that, if not addressed, can trigger serious complications, including cardiovascular diseases and dementia, significantly impacting individuals’ quality of life.

The relevance of the date highlights the urgent need to inform the population about the risks and symptoms of the disease, which is often silent in its initial stages. The mobilization of health professionals, entities and patients is crucial to disseminate knowledge and encourage the search for regular medical monitoring, preventing progression to advanced stages that require more complex therapies, such as dialysis.

Initiatives such as seminars and educational campaigns are fundamental for this purpose. Recentemente, a media awareness event focused on CKD as a “New Doença Nacional”, brought to light discussions about the reality faced by millions of people, highlighting the importance of early intervention and innovations in the treatment environment. The exchange of experiences between patients and explanations from doctors are pillars to strengthen public understanding on the topic.

The importance of early diagnosis and intervention

Detection of Doença Renal Crônica in the early stages is one of the keys to a more favorable prognosis. Muitos patients only discover the disease when it is already advanced, limiting treatment options and increasing the risk of serious complications. Exames routine tests, such as urine and blood tests (creatinine), can identify kidney changes early, allowing measures to be taken to delay or even prevent the progression of the disease.

Interventions such as lifestyle changes, blood pressure and diabetes control, and the use of specific medications are effective when applied in time. Awareness of risk factors such as high blood pressure, diabetes, family history of kidney disease and old age is vital so that people can seek medical help before kidney damage becomes irreversible.

Patients’ voices: anguish and overcoming

The experiences of those living with Doença Renal Crônica reveal a scenario of significant challenges. Conforme statements presented in lectures about the reality of patients, the anguish faced with the diagnosis and the impact on quality of life are profound. The need to adapt to a treatment routine, often involving dialysis, raises concerns about the continuity of professional and social life.

Patients report the initial shock upon receiving the news, feelings of loneliness and the desire to escape reality. However, the story of overcoming and the search for quality treatment are sources of inspiration. Encontrar uma equipe médica confiável e um atendimento adequado faz toda a diferença para que o paciente encontre forças para enfrentar a doença e, quando possível, retornar às suas atividades diárias e profissionais.

The vital role of Conselho Nacional of Doenças Renais

Organizations like Conselho Nacional of Doenças Renais play an indispensable role in supporting these patients. With thousands of members, predominantly those on dialysis, the council works on several fronts to improve quality of life and social integration. Suas activities range from raising awareness about kidney diseases and providing valuable information for patients and their families, to supporting outpatient care, employment programs and counseling in multiple areas – medical, therapeutic, professional and psychological. The existence of patient groups provides an environment where individuals can share their experiences, feel understood, and find the support they need to navigate the challenges posed by the condition.

Disparities in treatment and the search for quality

Despite advances in medicine, the quality of treatment for Doença Renal Crônica can vary considerably between healthcare institutions. Disparities in medical care, especially in staff level and experience, represent an obstacle for many patients. The search for a hospital or clinic that offers complete and humanized treatment, with trained and empathetic professionals, is a right and a necessity to guarantee well-being and the effectiveness of therapy.

Finding a team that exudes confidence and offers consistent treatment is essential. Pacientes who achieve this connection feel safer and more motivated to follow medical advice, which directly reflects on their resilience to deal with the disease. The fight for an equitable and high-quality standard of care in all health units is a constant banner for patient councils and associations.

Social reintegration and psychological support

Doença Renal Crônica and, in particular, the need for dialysis, can create serious difficulties in professional and social reintegration. Pacientes who leave their jobs often face barriers to returning to the job market, which worsens the psychological impact of the disease. Nesses cases, patient groups and councils such as Conselho Nacional of Doenças Renais offer valuable support, carrying out consultations and intermediating contact with companies.

In addition to the professional aspect, psychological support is crucial. The possibility of talking to other people facing similar challenges, sharing feelings and coping strategies, contributes significantly to emotional well-being. Exchanging experiences in support groups promotes a sense of community and reduces the feeling of isolation, empowering patients to deal with the disease in a more active and positive way.

Strategies for living with kidney disease

Upon receiving a diagnosis of CKD, it is imperative that the patient adopt an active and informed stance to manage the condition. The first step is to seek a complete understanding of the disease and its implications. Isso includes:

  • Understand the disease in depth, its stages and prognosis.
  • Seek active treatments and strictly follow medical instructions to slow progression.
  • Connect with support groups and patients, leveraging experience and mutual support.
  • Get guidance from specialized nutritionists, adapting the diet to kidney needs.
  • Facing the reality of CKD

    It is essential that patients face Doença Renal Crônica head on, without complacency. A proactive attitude in managing kidney health is the best defense against disease progression. Aqueles who adopt a passive stance, believing that “only I am fine”, run the risk of facing irreversible consequences. Continuous awareness and adherence to treatment are essential to avoid serious complications, such as the urgent need for dialysis or the development of other associated conditions, such as retinopathy. Collaboration between patient, family and medical team is the basis for effective management and preservation of quality of life.

    Future perspectives in kidney health management

    The kidney health scenario is constantly evolving, with research and innovations that promise to improve diagnosis, treatment and quality of life for patients with Doença Renal Crônica. The search for more effective and less invasive therapies, together with improvements in dialysis and transplantation techniques, offers new hope. Além In addition, public health campaigns continue to expand, aiming to reach a greater number of people with preventive and educational information. The integration of digital technologies in monitoring and monitoring patients also represents a significant advance, making care more accessible and personalized, reinforcing the commitment to kidney health on a national and global scale.

    Maria Clara é colaboradora da redação do Mix Vale, portal de notícias com cobertura de Brasil e mundo. Produz conteúdo nas editorias de economia e benefícios, com foco em informação de serviço para o leitor brasileiro. Escreve para o portal desde 2016: Formação: Atriz.

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